Saturday, October 23, 2010

I have hair.

At first I thought I might be imagining that my hair is growing back. There has been a very sparse little bit of invisibly pale prickly stubble this whole time, and within the last couple of weeks I noticed it felt softer and maybe more densely populated, but I wasn't sure...and it just seemed too soon. I was only halfway through the Taxol. But people commented on it, and now it's unmistakeable. I have hair. It isn't even invisibly pale anymore - this week it's darkening up a little, so I'm guessing it's going to come back as my previous natural mousy brown (though I hadn't seen that color in years, having been a boxed redhead since college).

I guess I'm supposed to be excited about this, but I'm not really sure how I feel about it. I've gotten used to being bald, and this fuzz sticking out of my head is not particularly flattering right now. But as soon as it's long enough that my scalp is not visible through it I plan to stop wearing headcoverings to work, and that will be awfully nice. I love my wigs and I do have a lot of fun coming up with creative scarf wraps, but by the end of the day I can hardly stand that feeling of something on my head.

Truth is, it probably isn't about the hair at all. I find the bald look kinda striking & sexy, but the super-short pixie will be, too. What feels weird is that this signals the ending of this phase of my treatment. It's a good thing, but it's also scary. Going to chemo every week is doing something, and I have a lot of lovely people looking out for my health in a very tangible way. I'll still have a couple of follow-up appointments in December (including the dreaded MRI, yech), and then I'll move on to radiation next year (5 days a week for 6 weeks), but after that my appointments will get less and less frequent. That's a good thing, right? Yet there's something so comforting about the chemo routine. It's as if the cancer can't come back because I go to the hospital every week.

Wednesday, October 20, 2010

Bummer

It's awfully silly of me, I know, because my chances of ever getting into space have pretty much always been zero. But glancing at this article today, it occurred to me that I could never be a candidate for space travel/colonization now - I'm a lousy health risk. It made me sad. Space travel is on the VERY short list of things I'd gladly risk my life for.

Sunday, October 17, 2010

(not) dancing through chemo

I was one of three dancers who were supposed to perform at a local restaurant last night, but the owners cancelled just after we arrived. This is not okay, by any means, but I have to admit I wasn't sorry. I hate it that I would rather sit at home streaming episodes of Monk on the Xbox than dance, but that's where I am right now. Dancing would feel great and I know it, but I can hardly bring myself to make the effort beyond my one drill class a week. Am I just physically tired? Depressed? Either way I know I'd feel better dancing more often - practicing a lot more often, and performing sometimes too.

Saturday, October 9, 2010

Chemo Style

All right, it's time to just start talking about this. If I wait until I have everything organized and lined up and perfect I will never do it, so I'm just going to start where I am and (hopefully) get better from here.

First, a "before" pic. This was a couple of weeks after my second surgery, about a week before my donation haircut.

And here I am shortly after the initial shave - still sporting the G.I. Jane stubble, but pretty bald:

Which brings me to my first chemo style tip:
Do not be afraid to rock the big earrings.
The bigger and danglier the better. Whether you wear a scarf, a hat, or a short wig (and it seems many of us do end up more comfortable in short wigs rather than longer ones), or go around bald, there will never be a better time to show off huge, fun earrings.


Thursday, October 7, 2010

Taxol #5

I'm in a private room today. I've had a cold all week, and I'm in here to avoid spreading it around to other patients. It's definitely less fun in here. Chemo nurses are a very special breed, and I can hear them chatting and laughing out there in the fun zone while I sit in a bed in this quiet little room. Oh, well, it still beats having to wear a surgical mask over my nose and mouth. I'm not especially claustrophobic, but I can't stand the feel of my own hot exhalations crammed up against my face.

I am theoretically going to be filmed today for a video being made for future patients. My nurse asked me - the video is mainly about her, because she went through all of this as a patient before becoming a chemo nurse. They want to film her interacting with some patients and I have no problem with that. I hope it helps someone feel a little less scared and overwhelmed. Kinda makes me want to check my makeup though.

Sunday, October 3, 2010

One more thing

My beloved Steelers are pinking it up for October.

Taxol #4

So far, so good. Taxol #4 was last Thursday. My hands are a little tingly, definitely heat-sensitive, but it comes and goes. I'm waking up at least once or twice a night with a sweat-soaked pillow, my skin is drying out a little (but that could be partly seasonal), and I'm definitely more emotional; but it still beats the Adriamycin/Cytoxan combo that had me achy and exhausted every other weekend and developing aversions to various smells, tastes, and even the thought of certain smells and tastes.

I've been meaning to write about all kinds of things, and as usual, now that I'm here I can't think of any. Well, not that I'm prepared to get into right now, anyway. My boss has been suggesting I blog about my scarf stylings, but that obviously calls for photos. I'll do that soon though.

I didn't get to blog during my last chemo session because I forgot to hibernate my netbook in the morning, so by the time I got to the chemo suite the battery was dead. It was a good day for that to happen though - my dad came by and I really enjoyed chatting with him.